Well, I'm sorry it's taken me so long to post another blog. We have had a few appointments since the last time I blogged. However, I really have nothing to report except that we had a fun weekend away at the lake and Sydney seemed to have a good weekend, the best she's had in a long time. We hoped that she was turning a corner, but yesterday evening was pretty tough on her as well as this morning. We are continuing to see the chiropractor and now we are adding the naturopath to the list. We see her tomorrow. I just keep following suggestions that sound promising and hope that something makes Sydney feel better. Yesterday, I had someone ask me, "if I had considered that she is having gas pains and bicycled her legs." I wanted to tell her that this child has peddled more miles than Lance Armstrong, but I understand she was trying to help. I really wish she was right, that would be great. Another test came back negative for organic acids. We will be doing some work with the metabolic team at OHSU soon, as well as the GI specialists, neurologist, and geneticists. I'll be keeping you posted. Thanks for all your support. Love, Amber
Here is a video when she was a month old before the episodes started.
Tuesday, June 2, 2009
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3 comments:
that was so cute!!
Jackie
She is soo sweet! We are praying for some answers and asking God to comfort you 3 in the meantime! Let me know if you want any visitors and anything! Love you guys!
Martta
We are praying for you guys everyday and we are here for you. I wish I could help but I've never been through anything close to this.Do you guys have a support group for parents that are in the same boat?
Tes
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