Please Forgive me for not updating my blog lately, we have been very busy with all our appointments and phone calls and dirty diapers. However, I really don't have much to update. We have continued to be on a wild roller coaster ride for the past week. Like my dad says, " Two steps forward, one step back..." Sydney had a rough weekend, but the past two days have been easier on her. Yesterday she had a great day, it was her best in a long time. We always hope that she will continue to progress...

We did get some bad news from the neurologist on Tuesday. Three of the blood tests that OHSU had done over a month ago were never sent in. Dr. Konkol, the neurologist had them triple check on their status and found them overlooked and lost in their system somewhere. I was very frustrated, since we had to get her blood drawn again two days in a row for the amount they needed to resend those tests. They have all been sent now, I called, and we will get 3 of the results back the week of June 22nd, and the 4th we will get in the beginning of July. Dr. Konkol also discussed some possibilities with us, which are not very pleasant to say the least. We will wait for the tests to come back before we worry ourselves sick. We have better things to worry about, like whether she's getting enough kisses...

Thanks to everyone for being so supportive. We've needed it! Next on our agenda this month is the neurometabolic appointment, Genetic appt., GI appt., another EEG, more Chiropractor visits, and we are scheduling an ERG with the eye doctor. The ERG is like the EEG, but for the eyes, for signs of visual stimulation I guess. We will hold off on the ERG till she is a little older and more developed. In the meantime she is still eating, sleeping, and making dirty diapers. She also smiles, makes lots of noises, and is starting to roll over from her back to her stomach. Also, she is scooting on her back all over, she seems very strong aside from her head control. She's just not a big fan of tummy time. I'll try to write soon. Love, Amber