Back to the Hospital we go...

So, we had to go back to Dorenbecker's, today is our third day here. I just found out they have computers we can use. We had our GI appointment and then we were admitted to the hospital. Sydney really needed to eat since she weighs less now than she did on May 5th. I know it's scary. But we have now gotten her a feeding tube and she is keeping it down great so far. Her episodes are the same, horrible, but at least she is getting food in her tummy. We did a barium swallow test and found that she is getting some pooling on her vocal chords and it's going into her airway. This is not good. So, we will continue with the feeding tube in her nose for a while, which just so you know doesn't seem to bother her too much. Then, most likely we will have to put a feeding tube in her tummy. However, we will begin to practice eating and swallowing with the speech pathologist soon. Her little swallow muscles just aren't very strong right now and we expect that her brain might have something to do with all of this. We will keep trying to get her help whatever that may be. The doctors have been very good with her and with us. They say we may get to go home tomorrow for the Fourth of July but we will see how Sydney is then and they will show us how to use the feeding tube and all the equipment in the morning. Thank you everyone for your prayers and support. Love, Amber